The main goal of the National Policy for Rare Diseases (2021), Government of India (GOI), is to lower the prevalence of rare diseases by spreading awareness among the general public and healthcare providers and providing counseling and genetic screening services to couples to prevent childbirth with rare diseases. Key features of India’s rare disease health policy The institutes, including the All India Institute of Medical Sciences, New Delhi, and King Edward medical Hospital, Mumbai, will be the center of excellence for rare diseases . Department of Biotechnology has established ‘Nidan Kendras’ for rare disease genetic screening and counseling services.
State governments can support rare disease patients who need special diets and medications . Crowd-funding can be generated by the GOI or volunteers to raise funds to treat patients with rare diseases. GOI encourages research…
