In USA the concept of working rare diseases is well accepted and there are institutions created for the same and every one have one hundred cases assigned to each. Roughly it is being mentioned that thirty to forty percent of cases worked out every year with all possible investigations and after diagnosis possible treatment available at the moment is given free of cost because of the enormous money involved and not possible for the patient to spend. The same way some two years ago, there was an announcement in India, from Ministry of Health and Family Welfare for creating rare diseases Institutes. Unfortunately, till now the scheme is not implemented.
There is a hesitation on the part of government when comes to expenses on medical service. We have enough funds for Chandrayaan and the benefit to reap you need to wait for years.Here you can help the poor sufferers instantaneously. You…